Director, Patient Advocacy and Operations

Company Overview: Dyne Therapeutics is focused on delivering functional improvement for people living with genetically driven neuromuscular diseases. We are developing therapeutics that target muscle and the central nervous system (CNS) to address the root cause of disease. The company is advancing clinical programs for Duchenne muscular dystrophy (DMD) and myotonic dystrophy type 1 (DM1) as well as a preclinical programs for facioscapulohumeral muscular dystrophy (FSHD) and Pompe disease. At Dyne, we are on a mission to deliver functional improvement for individuals, families and communities. Learn more at https://www.dyne-tx.com/ , and follow us on X , LinkedIn and Facebook . Role Summary: The Director, Patient Advocacy & Operations works as part of the Corporate & Patient Affairs (C&PA) team with two key areas of focus: 1) Cultivating and supporting strategic partnerships with patient advocacy organizations and 2) day-to-day management of key Patient Advocacy and Corporate Affairs operations. Reporting to the VP, Patient Advocacy, this role is highly integrated with internal cross-functional teams and partners with external organizations. This role is based in Waltham, MA and does not offer a remote option. Primary Responsibilities include: In collaboration with the VP of Patient Advocacy, partner closely with advocacy leaders and the broader patient community to advance key initiatives, including but not limited to: Executing the patient advocacy strategy in alignment with corporate objectives Fostering strong, strategic relationships with patient leaders, caregivers, and advocacy organizations to inform company programs and priorities. Leading the planning and management of Patient Community Advisory Panels/Boards. Conducting one-on-one engagements with patient advocacy leaders to identify‑ needs, insights, and opportunities for collaboration. Supporting clinical trial awareness and recruitment efforts through patient engagement and community focused‑ initiatives. Collaborating with Medical Affairs, Marketing, Market Access/Patient Services, and Corporate Affairs to integrate the patient voice into R&D, clinical trial design, and commercialization efforts. Representing Dyne at patient advocacy events, conferences, and advisory boards. Collecting, synthesizing, and sharing patient community insights across functional teams. Identifying and coordinating community participants for Dyne-led events (internal and external). Partner with the VP of Patient Advocacy to plan and execute conference and patient advocacy organization (PAO) engagement activities: Supporting Dyne’s presence at patient advocacy and select scientific/medical conferences including event planning, session development, patient-facing materials, symposia, presentations, and on-site event execution. Staffing events; willingness to travel approximately 20%. Serve as the operational lead for the Patient Advocacy Grants, Sponsorships & Donations committee, including budget oversight and end- to- end management of the submission process, such as coordinating with requestors, ensuring proper documentation, and overseeing contracting and payment workflows. Support the planning and execution of enterprise-wide events (e.g., advocacy walks) that bring patient community voices into the organization, serving as a Patient Advocacy representative on cross functional teams and supporting coordination tasks when needed. to support the delivery of high-quality experiences. Manage and own patient engagement–related contracting, ensuring compliance and timely execution. Lead operational processes for advancing patient advocacy materials through Medical Legal Review (MLR), ensuring accuracy, alignment, and compliance. Education and Skills Requirements: Bachelor’s degree in a relevant field and a minimum of 10+ years of related experience (social work, genetic counseling, nursing, public health preferred). 8+ years of experience in patient advocacy in the biotech/pharmaceutical